Springfield Standard

WASHINGTON – Today, Senator Eric Schmitt announced that the President and CEO of the TSC Alliance, Kari Luther Rosbeck, will be appearing as his guest of honor to the State of the Union address.

“My son, Stephen, was born with tuberous sclerosis complex, a rare genetic disease that causes tumors on his major organs. Kari has been a great friend and has worked tirelessly to raise awareness for tuberous sclerosis complex and make life better for those with this rare disease. I am proud to have her attend tonight’s address as my distinguished guest and look forward to continuing to work with her and all the talented individuals at the TSC Alliance into the future,” said Senator Eric Schmitt.

“It is truly an honor to have been invited by Senator Schmitt to the State of the Union. His collaboration with the TSC Alliance, both in Missouri and federally, has been pivotal in advancing funding for tuberous sclerosis complex (TSC) research and enhancing the quality of life for those affected. As Senator Schmitt’s son, Stephen, courageously confronts TSC, our commitment to improving his life and the lives of all impacted by this condition remains unwavering,” shared Kari Luther Rosbeck, President and CEO of the TSC Alliance.